Ibyo ukeneye kumenya kubyerekeye ubuzima bwo mumutwe bwumwana wawe

Kugira JIA birashobora kongera umwana wawe ibyago byo kwiheba no guhangayika.Dore uburyo bwo kubafasha guhangana.
Gukura birashobora kuba bigoye bihagije, ariko iyo wongeyeho mubihe nka arthritis idiopathic arthritis (JIA), birashobora gutuma ubwana nubwangavu bigorana.Kubabara hamwe birashobora kubangamira ubuzima bwa buri munsi bwumwana wawe, ntibitera ibibazo byumubiri gusa ahubwo binatera ibibazo byamarangamutima nko kwiheba cyangwa guhangayika.Twaganiriye ninzobere muburyo butandukanye JIA igira ingaruka kumagara yumwana nuburyo ushobora gufasha umwana wawe guhangana no gukura.
Indwara zo mu mutwe nko kwiheba no guhangayika zikunze kugaragara cyane ku bana barwaye JIA, nk'uko Diane Brown, MD, inzobere mu kuvura indwara z'abana mu bitaro by’abana bya Los Angeles abivuga.Ati: “Mbere ya COVID, ikigereranyo cyiza ni uko 10 kugeza 25 ku ijana by'abana barwaye rubagimpande baba bafite ibimenyetso bikomeye byo kwiheba cyangwa guhangayika”.“Ntekereza ko ubu ari muremure.”Niyo mpamvu ari ngombwa cyane cyane kumenya ibimenyetso byo kwiheba no guhangayika nuburyo bwiza bwo gushyigikira ubuzima bwumwana wawe.
Dr. Will Fry, inzobere mu bijyanye n’imitekerereze y’abana mu bitaro by’abana bya Johns Hopkins Clinic Pain Clinic i St. Petersburg, muri Floride, yavuze ko JIA igira ingaruka ku buzima bwo mu mutwe mu buryo bwinshi.Ati: "Icy'ingenzi birashoboka ko ari ububabare bujyanye na JIA".“Ingaruka z'umubiri ku ngingo zishobora no gutuma abana bakora bike kandi bakababazwa no kutabasha gukora ibintu.”abantu bafite ububabare budashira.Dr. Brown yagize ati: "Ububabare ni bwo bwahanuye cyane kwiheba ku bana barwaye rubagimpande."
Ibidateganijwe bijyanye no kubana nindwara zidakira birashobora kuba umutwaro uremereye kubana ningimbi.Fry yagize ati: "Kutamenya neza ibimenyetso bazagira ndetse n'ubuzima bwabo bizaba bimeze birashobora gutuma abana bumva bihebye cyangwa nta cyizere bafite."Inzira ya JIA ubwayo irashobora kuba idateganijwe, biganisha kuri ibyo byiyumvo.Ati: “Abarwayi bafite iminsi myiza n'iminsi mibi kandi ntibazi neza niba bazareba neza ikizamini gikomeye cyangwa urugendo bajya i Disneyland kubera ko rubagimpande zabo zishobora gukongoka - ibyo ni bimwe mu bihangayikishije.imbarutso y'ingenzi, ”nk'uko Dr. Brown yongeyeho.
Fry avuga ko indwara zidakira zishobora gutuma umuntu wese yumva ko ari wenyine, ariko birashobora kuba ingorabahizi ku bana ndetse n'ingimbi mu cyiciro cy'ubuzima bwabo iyo basanzwe bashaka gusabana no guhuza na bagenzi babo.Ikibazo cya JIA gishobora kongera ibitutsi kubikomeretsa.Dr. Brown agira ati: “Yaba gukambika hamwe n'umuryango cyangwa gukina umupira w'incuti, kutabasha gukora siporo birashobora kukubabaza.Ati: “Ugomba gufata imiti ukiri ingimbi mugihe ushaka kumera nkabandi bose birashobora kuba urundi rugamba.”.
Kwiyongera kurugamba rwimibereho nukuri kubabaje kuba abantu benshi batumva gusa kubana na JIA.Ati: "Biragoye cyane mugihe ubuzima bwawe bukunze kuba butumvikana kubandi bantu kandi ntibugende - mugihe inshuti zawe zidafite abakinnyi basinya kandi ntizitezimbere nkububabare bukize.Shaka impuhwe n'inkunga.bikaba bigoye kuri bagenzi bawe ndetse n'umuryango wawe kubyumva. ”Dr. Brown.Kurugero, umwarimu ntashobora kumva aho umunyeshuri agarukira mumashuri ya PE, cyangwa ashobora kugira ikibazo cyo kurangiza ikizamini mugihe urutoki rubabaje kubera arthrite.
Iyo ibyo bintu byose byitabweho, ntibitangaje kuba abana barwaye JIA bashobora guhura nibibazo byamarangamutima nko kwiheba cyangwa guhangayika.Ariko nigute ushobora kumenya niba umwana wawe afite ibibazo bidasanzwe kandi akeneye inkunga yinyongera?Fry agira ati: “Shakisha uburakari, kumva ko wanze, abana ntibagerageza kumarana umwanya n'incuti cyangwa gukora ibintu bahoze bashaka gukora.”Ibyiyumvo byo kutagira ibyiringiro, umubabaro uhoraho, kandi birumvikana ko igitekerezo icyo ari cyo cyose cyangwa ibiganiro byerekana ibimenyetso byangiza byerekana ko umwana wawe akeneye ubufasha bwihuse.
Kwiheba no guhangayika birashobora kandi kugaragara nkibimenyetso byumubiri bigenda bitamenyekana mubana ningimbi.Dr. Brown yagize ati: "Kwiyongera kw'ibibazo by'ibimenyetso bidasobanutse kandi bivanze, nko kubabara umutwe, isesemi, kubabara mu gatuza, kutarya, n'ibindi, birashobora kandi kuba ikimenyetso niba izindi ndwara cyangwa ibikomere byanze bikunze."Avuga ko kandi, impinduka iyo ari yo yose ihinduka mu gusinzira cyangwa mu kurya, cyane cyane kongera ibiro cyangwa kugabanuka, bishobora no kwerekana ihungabana cyangwa guhangayika kandi bigomba kwerekana ko umwana wawe akeneye inkunga.
Nkumubyeyi cyangwa umurezi, birashobora kukubabaza kubona umwana wawe arwana kandi ntushobora kumenya aho uhera kugirango umuhe ubufasha akeneye.Fry agira ati: “Ahantu heza ho gutangirira ni mu rugo rwawe ndetse n'imibanire yawe n'abana bawe.Ati: “Byose bitangirana no gushobora kuvugana n'abana bawe, kwemeza ibyiyumvo byabo kandi rwose kubana nabo mubyo barimo byose”.Fondasiyo ya Arthritis ivuga ko ibiganiro byafunguye kandi byukuri (nubwo bikwiranye nimyaka) kubijyanye nubuzima bwabo no kuvurwa birashobora kandi gufasha umwana wawe kumva ko ashyigikiwe.
Gushyigikira ubuzima bwo mumutwe bwumwana wawe bisobanura kandi kubatera inkunga yo kwishimisha nibikorwa byimibereho.Urashobora gukenera guhanga kugirango ubafashe kubona inzira zo guhindura ibikorwa kugirango bakomeze kwitabira nubwo ibimenyetso bya JIA, Fry.Fondasiyo ya Arthritis ivuga ko ibi ari ingenzi cyane kuko bifasha kubaka “kwigira” mu bana, cyangwa kwizera kwabo ko bashobora gutsinda ku kintu gishobora gufasha kurwanya ihungabana.Fry yagize ati: "Abana bameze neza iyo hari icyo bakora."“Fata ibyo ukunda cyangwa ushake uburyo abana bazishimira ibyo bishobora gufasha guhagarika urubura.”
Ijambo therapy riracyafite agasuzuguro, ariko abana benshi bafite JIA barashobora kungukirwa ninkunga yinyongera itangwa ninzobere mubuzima bwo mumutwe nka psychologue.Fry avuga ko mugihe cyo kuvura, umwana wawe ashobora gusangira urugamba rwabo na JIA, akabona inkunga, kandi akiga ingamba zingirakamaro zo guhangana nubuzima bwe bwose.Wibuke, kuvura ntabwo ari ugukemura ibibazo bikomeye byubuzima bwo mu mutwe - bifasha abana benshi, nubwo ari ingamba zo kwirinda.Dr. Brown yagize ati: “Benshi mu barwayi bacu bungukirwa no kuganira ku burwayi bwabo n'umuntu watojwe gufasha abana bafite ibibazo bidakira.”
Isuzuma rya JIA rishobora guhindura isi yumwana wawe kandi bigatuma bumva bafite irungu, ariko hariho inzira nyinshi zo gutanga ubufasha bwimitekerereze kugirango bakomeze gukura no gutsinda mubuzima.Akenshi, guhuza ingamba birasabwa kugirango ushyigikire neza umwana wawe, byaba bifasha umwana gukomeza guhura ninshuti cyangwa ibyo akunda, cyangwa guhuza numuvuzi.Dr. Brown aratwibutsa ati: “Menya ko gushaka ubufasha mu bibazo byo mu mutwe bishobora kuba imbaraga, aho kuba intege nke.”“Kwitabira hakiri kare birashobora gukumira ibibazo bikomeye.”